Jan 26, 2011 – According to statistics from the National Institutes of Health (NIH), there are approximately 7000 different rare diseases that together affect over .

1 day ago – A new study reports that a drug already approved by the Food and Drug Administration for use in patients undergoing a bone marrow .

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Steve is the Director of the Office of Rare Diseases (ORD) at the National Institutes of Health (NIH). His major focus is on stimulating research with rare diseases .

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Apr 3, 2011 – StopCAIDnow is a site that will help families come together, get answers, communicate with Dr's, get latest information, treatments being used.

Apr 18, 2011 – Researchers have found that defects in a molecule called a .

May 21, 2009 – The new NIH program, called Therapeutics for Rare and Neglected Diseases, or TRND, will be fueled by $24 million per year for five years. .

Feb 17, 2011 – The National Institutes of Health will celebrate the Fourth Annual Rare Disease Day Feb. 28 with a day-long celebration co-sponsored by the .

Mar 22, 2011 – Contact information for the Genetic and Rare Diseases Information Center, sponsored by NIH's Office of Rare Diseases and the National .

NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases .

Apr 7, 2011 – Official website of the National Institutes of Health (NIH .

Apr 6, 2011 – The NIH and European Commission have kicked off an ambitious initiative to called the International Rare Disease Consortium to develop a .

The Office of Rare Diseases Research (ORDR) at the National Institutes of Health (NIH) coordinates research and information on rare diseases at the NIH and .

Oct 13, 2009 – The University of North Carolina at Chapel Hill has been awarded a five-year, $6.2 million renewal grant to continue its work as part of the .

Feb 5, 2011 – On February 28, 2011, the National Institutes of Health (NIH) will celebrate the 4th annual Rare Disease Day with a day-long celebration and .

The NIH's Office of Rare Diseases Research (ORDR) was established by H.R. 4013/Public Law 107-280 in 2002. H.R. 4014, signed the same day, refers to the .

Feb 14, 2011 – Rare diseases, by definition, are diseases that affect fewer than 200000 people in the United States. Yet, they present a significant health care .

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Feb 25, 2011 – In preparation for World Rare Disease Day, Orange County based non-profit gets visit from the nation's leading Health Champion for Rare .

1 day ago – A new study reports that a drug already approved by the Food and Drug Administration for use in patients undergoing a bone marrow .

Feb 25, 2011 – In the bright, airy atrium, an Argentine boy and a Jamaican boy watch, transfixed, as a boy from Utah plays on an Xbox. A Ukrainian family sits .

Jun 17, 2009 – Information about the NIH Undiagnosed Diseases Program, designed to provide answers for people with medical mysteries and unknown .

Feb 24, 2011 – Monday, Feb. 28, is Rare Disease Day 2011. Here is a great story from the Orange County Register, which is helping to raise awareness for .

Apr 6, 2011 – According to the NIH website, a rare (or orphan) disease is generally considered to affect fewer than 200000 in the United States. Because .

Apr 27, 2011 – Rare diseases are likely to get more attention now that an international consortium of patient advocacy groups and research funders has vowed .

NIH Announces Expansion of Rare Diseases Clinical Research Network Nineteen New and Returning Consortia to be Awarded $117 Million The National .

1 day ago – A new study reports that a drug already approved by the Food and Drug Administration for use in patients undergoing a bone marrow .

by WA Gahl - 2011 - Related articles

http://www.niams.nih.gov/Health_Info/Lichen_Sclerosus/default.asp. Rare Diseases Clinical Research Network (More information on this publication) .

Francis S. Collins, M.D., Ph.D., Director of the National Institutes of Health, talked with NIH MedlinePlus magazine about the impact of cell phone technologies on .

1 day ago – To treat rare disease, NIH scientists repurpose FDA-approved drug ( medicalxpress.com). submitted 13 minutes ago by ic3burg · comment .

Oct 5, 2009 – The National Institutes of Health announced today a second phase of the Rare Diseases Clinical Research Network including funds for 19 .

2 days ago – {AAAS via BioPortfolio} (NIH/National Institute of Allergy and Infectious Diseases) A new study reports that a drug already approved by the FDA .

Sign up for Twitter to follow NIH ORDR (@ORDR). National Institutes of Health ( NIH) Office of Rare Diseases Research (ORDR)

Novel antifungal from Viamet selected for NIH rare diseases drug program. Pharmaceutical company Viamet has been selected by the National Institutes of .

Oct 5, 2009 – Free Online Library: NIH Announces Expansion of Rare Diseases Clinical Research Network. by "National Institutes of Health: News and Events" .

Feb 24, 2011 – Join in activities to celebrate the 4th annual Rare Disease Day to . and recognition of the various rare diseases research activities at NIH's .

The NIH Office of Rare Diseases Research (ORDR) sponsors Angel Flight at NIH so more patients can benefit from leading-edge treatments and help scientists .

NIH looks to speed genetic discoveries into usable therapies for rare diseases. by UMR on April 29, 2011. This week, Lauran Neergaard of the Associated Press .

Feb 28, 2011 – On February 28, 2011, the National Institutes of Health (NIH) will celebrate the 3rd International Rare Disease Day with a day-long celebration .

May 26, 2009 – The NIH Office of Rare Diseases Research (ORDR) will oversee the program, and TRND's laboratory operations will be administered by the .

Mar 10, 2011 – The U.S. National Institutes of Health (NIH) classifies a rare disease as affecting less than 200000 individuals in the United States. .

As one patient advocate at Rare Disease Day at NIH on February 28 put it, alone they are rare, but together they share a common bond: hope. .

Apr 25, 2011 – Dr. Bloom gave an overview of an upcoming NIH curriculum module that helps students to use medical information from rare disease patients .

10+ items – There are close to 7000 rare diseases and about 25 million .

Newsletter of the NIH Rare Diseases Clinical Research Network Volume 2, Issue 1. Spring 2011. www.RareDiseasesNetwork.org .

Jul 26, 2010 – Rare diseases, which the NIH defines as diseases that affect fewer than 200000 people in the U.S., represent a small market. .

Jul 24, 2010 – A government program focusing on rare diseases has launched five pilot projects that are taking the National Institutes of Health in a new .

May 22, 2009 – Drug companies need little arm-twisting when it comes to investing their resources into diseases that afflict millions. But what about a disease .

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